Elegy for A Disease
A Personal and Cultural History of PolioBook - 2006
In this dazzling memoir, Anne Finger interweaves her personal experience with polio with a social and cultural history of the disease. Anne contracted polio as a very young child, just a few months before the Salk vaccine became widely available. After six months of hospitalization, she returned to her family's home in upstate New York, using braces and crutches. In her memoir, she writes about the physical expansiveness of her childhood, about medical attempts to "fix" her body, about family violence, job discrimination, and a life rich with political activism, writing, and motherhood.
She also writes an autobiography of the disease, describing how it came to widespread public attention during a 1916 epidemic in New York in which immigrants, especially Italian immigrants, were scapegoated as being the vectors of the disease. She relates the key roles that Franklin Roosevelt played in constructing polio as a disease that could be overcome with hard work, as well as his ties to the nascent March of Dimes, the prototype of the modern charity. Along the way, we meet the formidable Sister Kenny, the Australian nurse who claimed to have found a revolutionary treatment for polio and who was one of the most admired women in America at mid-century; a group of polio survivors who formed the League of the Physically Handicapped to agitate for an end to disability discrimination in Depression-era relief projects; and the founders of the early disability-rights movement, many of them polio survivors who, having been raised to overcome obstacles and triumph over their disabilities, confronted a world filled with barriers and impediments that no amount of hard work could overcome.
Anne Finger writes with the candor and the skill of a novelist, and shows not only how polio shaped her life, but how it shaped American cultural experience as well.
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"... A 1990 survey of polio survivors revealed that a quarter of them had been diagnosed with clinical depression. ... nearly all people who had polio experienced traumatic separations from their families, along with the wounds - both physical and emotional - of subsequent surgeries, and the ongoing injury of finding themselves in severely constrained social roles. In addition the pressure ... to minimize the extent of their disability, to be cheerful overcomers, to fit themselves into the normal world, often resulted in a bifurcated self. Along with the self who was competent ... another, more shadowed self lived - sensitive to criticism, fearful of being unable to live up to ... expectations, and above all, lonely, for this was the part of ourselves we were supposed to keep well hidden." (p. 252)
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